Velo-Cardio-Facial Educational Foundation
Details about this organization as well as an extensive fact sheet about the disease. Includes details about support groups, a mission statement and contact information.
The links on these pages have been checked by us and they are worth a look. By all means visit them but if you they contain unexpeccted content - web pages change too often for us to take responsibility the content of each one.... If you find something distasteful - please let us know and we will remove the link to that site.