Tuberous Sclerosis Alliance
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
Kolten's Tuberous Sclerosis Page
This is our son Kolten's story about having Tuberous Sclerosis. The seizures that took over his life and the amazing surgery that gave it back to him. that gave it back to him.
The links on these pages have been checked by us and they are worth a look. By all means visit them but if you they contain unexpeccted content - web pages change too often for us to take responsibility the content of each one.... If you find something distasteful - please let us know and we will remove the link to that site.
