Shwachman Diamond Syndrome Foundation
Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical informat...
Katie's Journey
Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
The links on these pages have been checked by us and they are worth a look. By all means visit them but if you they contain unexpeccted content - web pages change too often for us to take responsibility the content of each one.... If you find something distasteful - please let us know and we will remove the link to that site.
