Helpachild.net :: Help Save the Bennett Children
All 3 of the Bennett children have recently been diagnosed with Sanfilippo Syndrome, a rare genetic disorder that often leads to death before the teens.
Ben's Dream - The Sanfilippo Research Foundation
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
Welcome
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
A life For Elisa
Canadian based charitable group founded by the parents of Elisa Linton.
The links on these pages have been checked by us and they are worth a look. By all means visit them but if you they contain unexpeccted content - web pages change too often for us to take responsibility the content of each one.... If you find something distasteful - please let us know and we will remove the link to that site.
