Unlucky Mutant, Homepage
The author request help from geneticists, neuroscientists, pharmaceuticals or biotech companies.
Maddy's page
The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
Robert Kenneth Picklesimer
Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
The story of Robert Purkis
Parents tried to improve the health of a small boy with gut and mobility problems.
The links on these pages have been checked by us and they are worth a look. By all means visit them but if you they contain unexpeccted content - web pages change too often for us to take responsibility the content of each one.... If you find something distasteful - please let us know and we will remove the link to that site.
