CYSTINOSIS FOUNDATION HOMEPAGE
Cystinosis Foundation was founded in 1983 and is an all volunteer, non-profit organization dedicated to providing services for those suffering from cystinosis
Cystinosis Research Network
Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
EyeRounds.org: cystinosis
Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment. (February 21, 2005)
The links on these pages have been checked by us and they are worth a look. By all means visit them but if you they contain unexpeccted content - web pages change too often for us to take responsibility the content of each one.... If you find something distasteful - please let us know and we will remove the link to that site.
